Rare Disease Video - Pompe Disease - National Organization for Rare Disorders
Rare Disease Video - Pompe Disease - National Organization fo…
Aug 12, 2022
rarediseases.org
Pompe disease is a rare, progressive illness that shares symptoms with other neuromuscular conditions. Because of this, delays in diagnosis are common. Increasing awareness and education around #Pompe disease is vital to accelerate diagnosis. On #InternationalPompeDay, we are shining a light on the Pompe community and sharing their perspectives through the #PompePearls of wisdom initiative. Learn more as people living with Pompe disease share their experiences about living with this condition. |
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