Most people may not know about epidermolysis bullosa (EB) — better known as “Butterfly Skin” — but it is hard to forget once you see it. EB is a painful, rare skin disease that affects one in 50,000 ...

In 2017, PEOPLE spoke to Brandon Joseph, who is living with the rare disease epidermolysis bullosa. While many patients die during infancy, Joseph is now thriving at 20 Andrea Pett-Joseph Brandon ...

Doctors think baby Lane's blisters are the result of a genetic skin condition. May 13, 2014— -- Brittany Weingart knew something was wrong with her son about a week after he was born when she ...

A gene-therapy gel designed to treat the rare genetic condition "butterfly disease" showed success in a late-stage trial. When you purchase through links on our site, we may earn an affiliate ...

A tiny baby born with skin so fragile his parents are afraid to cuddle him because the slightest touch causes him to have blisters all over his body and leaves him “looking like Freddy Krueger” needs ...

Tucker Langford knows there's going to be a parade on Saturday, but he doesn't know that it will be for him. This week, he came home from Children's Mercy for at-home hospice care, battling a rare ...

For the first time, doctors were able to treat a child who had a life-threatening rare genetic skin disease through a transplant of skin grown using genetically modified stem cells. For the first time ...

Art has become an escape for a young North Texas girl living with a rare skin condition known as "butterfly skin," where even the lightest touch can cause pain. Through painting, 17-year-old Brianna ...